Axios

Axios @axios

@TreedinDC @ncats_nih_gov @jonirutter @RARE_X_ @nicoleboice .@jonirutter On medical costs for rare diseases: "If you think about the U.S. alone, that's $400 billion in direct medical costs per year that we're spending on rare diseases. This is a huge health care burden that we wanted to really understand and actually put a number on." https://t.co/7gDTpjwze4 — PolitiTweet.org

Axios @axios

@TreedinDC @ncats_nih_gov @jonirutter @RARE_X_ @nicoleboice .@nicoleboice: "There's three really big challenges that face rare disease: data silos, the lack of structured and appropriate data for research, as well as no data." https://t.co/1T8ZfKnfd7 — PolitiTweet.org